The sponsors of this web site are a voluntary group of retired professionals from different countries. Based in Europe, they have no connection with any other entity, charity or corporate, and have no external financial support. Being privately funded and the public have never been asked for money there is no requirement to register
the charity and incur the associated administrative costs.
Their humanitarian objective is to bring a potentially new horizon to those affected by ALS - irrespective of their financial status.
Web sites cost money to optimise. This web site is not intended to be viewed on mobile devices.
This site is published about once per year. Latest 2016. ALSFRS-R chart brought up to date.
Dec. 2016 ALSTDI page added. May 2017 Edavarone comparison page.
Nothing in this web site may be considered to be medical advice.
There is a recently registered domain:
www.RCH4als.com
, intended to provide information for those diagnosed with ALS/MND and is voluntarily sponsored by PALS around the world who are taking RCH4.
You may wish to join that group. That web site has no connection with us, however use of the word `RCH4` in that domain name is used with the permission of this charity.
Further RCH4 patient experience & information is available at
Patients Like Me